Christmas Giveaway

There are 11 Prize Packs to be won, each with a value between $400 and $600. The total prize value is around $7000.

Learning how to die

I will try to frame this in the sense of exploring how we process fear of death

Petition Publicity – the battle plan

You know people the rest of us don’t know and we need their support.

Persuasion Savvy Advocacy Challenge

It is not about presenting logical argument. It is about values and emotions. Values trump facts. Every time.

Review: Rejuvenation Lotion

This post is the first time I have been given the product as part of a product review through the Chronic Illness Bloggers network.

Spoonie Utopia

imagine that the next election results in a government whose top priority is people with ME/Spoonies

Contribute to NIH Research Strategy

Email the NIH and get your voice heard in ME research strategy. This post is my input.

Paralysis and PACE

I’m dictating this to Google lying down so the grammar Mike be a bit off. that is an example of what I mean which I’ll leave in for the comedy value, comedy is probably much needed in this post. I want …

10 insights on life: Awareness through ME

10 insights: This ME Awareness Day #May12BlogBomb post is a perspective from the awareness of having ME, looking outwards through ME, as opposed to turning the lens on ME itself.

Are you Disabled?

On Twitter there have been some interesting discussions this week about disability identity and ME. I think this is worth everyone with ME thinking about. For most of us ME is enduring, substantial & has a significant effect on our life. These are the very requirements of defining a disability.

Paradoxical Research Funding

An argument has erupted this week between UK psychologists and funders that has relevance for the problems we face with ME research. Could a common purpose create a very unexpected alliance to improve appropriate allocation of research funding?

Resource: Home Hacking Blood Glucose

My home version of a study into blood glucose and personalised nutrition

Review: Can Post-Exertional Malaise make a Placebo Effect seem like a Nocebo?

Does Post-Exertional Malaise lead to unusual Placebo Effects in ME that seem more like Nocebo? This post explores my experience of a Placebo controlled experiment.

MEaction Post

I’m writing more for other places, as well as my blog. This week was my 1st #MEaction post

Is it About Getting Better or NOT Getting Worse?

Is it not so much what you do as what doesn’t happen that determines recovery from ME? Musings in light of the finding of little difference between treatment groups at the PACE follow up. Is relapse more important than improvement? Tips for preventing relapse.

Resource: Walking Problems

This post includes tips that may help you with walking and muscle problems. Topics covered include mitochondrial function (MitoQ, D-Ribose, AMPK activation), lactic acid, electrolyte balance, autonomic function, pacing and adapting. Please comment on what I’ve missed out.

Spoonie Poem

A poem written for National Poetry Day with an explanation of why it is what it is.
A Twitter strategy for using trending hashtags for ME and Spoonie Awareness.
Planning a novel.