Waxing lyrical: ME Awareness

Everyone has had the experience of finding song lyrics meaningful to their circumstances, despite this not being the original purpose of the lyrics. An ME Awareness Day playlist with some explanation could be a new angle to help you understand my experience.

Review: Can Post-Exertional Malaise make a Placebo Effect seem like a Nocebo?

Does Post-Exertional Malaise lead to unusual Placebo Effects in ME that seem more like Nocebo? This post explores my experience of a Placebo controlled experiment.

Is it About Getting Better or NOT Getting Worse?

Is it not so much what you do as what doesn't happen that determines recovery from ME? Musings in light of the finding of little difference between treatment groups at the PACE follow up. Is relapse more important than improvement? Tips for preventing relapse.

Resource: Walking Problems

This post includes tips that may help you with walking and muscle problems. Topics covered include mitochondrial function (MitoQ, D-Ribose, AMPK activation), lactic acid, electrolyte balance, autonomic function, pacing and adapting. Please comment on what I've missed out.

I am POTS but what’s ME?

Topics touched on in this post: POTS vs ME symptoms; heart rate monitoring and exercise; exercise for POTS; post-exertional malaise; adrenal fatigue and POTS; diet and nutrition. This is a post which is more about asking for tips from you than offering tips. Please add POTS/ME based comments.

Resource: Quick Tips for Pacing

Quick Tips for Pacing. These may be new ideas to you or simply a reminder.

Review/Resource: Variations on Pacing

Bird in cage

A post discussing different forms of Pacing and the difficulties involved.

Am I PoTS or is it just ME?

Attempts to disentangle #PoTS and #MEcfs: Some observations from my experience of the diagnostic process.