This post includes tips that may help you with walking and muscle problems. Topics covered include mitochondrial function (MitoQ, D-Ribose, AMPK activation), lactic acid, electrolyte balance, autonomic function, pacing and adapting. Please comment on what I’ve missed out. Continue reading
Join Mendus studies, data is considered more powerful if there’s more of it. If you join in with the Diet Study it will be become slightly more powerful than it is today in representing genuine effects in the ME/fibromyalgia population. With more participants these Mendus studies could also have greater power in a normal sense: they will make more noise and people will take more notice. This is your chance to get personally relevant answers to some niggling questions without having to wait years for university-based research to receive elusive funding. Continue reading
This is a Guest Post by Sarah Caddick (who also wrote Capturing the Essence). It includes tips for carers and those with chronic illness on how to manage the caring relationship and also other tips for coping with day-to-day life with a chronic illness. Continue reading
Some recommended products for a comfier Spoonie life. Tips for resting, light sensitivity, support clothes and bras. Continue reading
Topics touched on in this post: POTS vs ME symptoms; heart rate monitoring and exercise; exercise for POTS; post-exertional malaise; adrenal fatigue and POTS; diet and nutrition. This is a post which is more about asking for tips from you than offering tips. Please add POTS/ME based comments. Continue reading
Is CFS “Real”?
Tongue-in-Cheek contemplation of the un/reality of CFS. Continue reading
Information about Homesharer Schemes – provide a free room and get around 10hrs a week support to stay in your own home. Continue reading
Tips that may enable you to cope with the boredom that accompanies spoonie life. Continue reading
Attempts to disentangle #PoTS and #MEcfs: Some observations from my experience of the diagnostic process.
This post is the 2nd in a series on pacing. Watching TV is likely to make up more of our day than meditating. It is therefore important to get viewing habits right.
This post is my TV prescription for you, in order of importance. It is based mainly on my own observations, although you could possibly find research to back up some of it.
At the moment because I’ve got into modern stoicism at the same time as looking into heart rate monitor pacing I’m finding that I’m sort of amalgamating these two very different approaches. Continue reading
The basic idea is to avoid hitting your Anaerobic Threshold (AT) or raising your Morning Resting Heart Rate (MRHR) to avoid crashes and relapses. Initially this may mean doing less (it has for me). Continue reading
5 things that you may not know about me.
Part of an awareness raising blog chain on May 12th 2014. Continue reading
Quick tip for getting to sleep. Continue reading