Paralysis and PACE

I’ve tried to tell this story how it unfolded without too much meaning making. Hopefully the contrast is clear though. I would be surprised if the hospital doctor wasn’t influenced by PACE and it’s repercussions.

Paradoxical Research Funding

An argument has erupted this week between UK psychologists and funders that has relevance for the problems we face with ME research. Could a common purpose create a very unexpected alliance to improve appropriate allocation of research funding?

Unknowing-Knowing: Epistemological Crisis in ME

An exploration of the crisis of not knowing which sources of information to trust.

How to Read a Newspaper

We read about someone who's found an instant cure from (insert Spoonie condition of your affliction) after a relatively short amount of time. This post unpacks some of our initial thoughts including: They were never ill in the first place; They were ill but it's not true that they are now well; They can't have had what I have; It's true that they recovered but for a different reason; It's great that they found a way to get well; If I try that will it work for me? I've been ill much longer, I'd know if that works; Why have I been ill so long? It's not fair; The newspaper has got it wrong.

Resource: Tips for Living with Illness

This is a Guest Post by Sarah Caddick (who also wrote Capturing the Essence). It includes tips for carers and those with chronic illness on how to manage the caring relationship and also other tips for coping with day-to-day life with a chronic illness.

Resource: Guided Meditations for Alternative Pain Relief

A collection of free, guided meditations from around the web to help you cope with pain. Styles included: insight meditation, yoga nidra, seated T'ai Chi, and seated Qigong

Resource: Quick Tips for Pacing

Quick Tips for Pacing. These may be new ideas to you or simply a reminder.

Review/Resource: Variations on Pacing

Bird in cage

A post discussing different forms of Pacing and the difficulties involved.

Review: Philosophy for Health, Modern Stoicism

Does an ancient philosophy have something new to offer folk experiencing chronic illness? A spoonie review of Modern Stoicism

Guest post link: Stress and ME

For today's post I'm a guest blogger over on MEcuperate: This post Much Maligned and Misunderstood: ME and Stress explains how I have readdressed my approach to stress and my ME.