I’ve tried to tell this story how it unfolded without too much meaning making. Hopefully the contrast is clear though. I would be surprised if the hospital doctor wasn’t influenced by PACE and it’s repercussions. Continue reading
An argument has erupted this week between UK psychologists and funders that has relevance for the problems we face with ME research. Could a common purpose create a very unexpected alliance to improve appropriate allocation of research funding? Continue reading
An exploration of the crisis of not knowing which sources of information to trust. Continue reading
We read about someone who’s found an instant cure from (insert Spoonie condition of your affliction) after a relatively short amount of time. This post unpacks some of our initial thoughts including:
They were never ill in the first place; They were ill but it’s not true that they are now well; They can’t have had what I have; It’s true that they recovered but for a different reason; It’s great that they found a way to get well; If I try that will it work for me? I’ve been ill much longer, I’d know if that works; Why have I been ill so long? It’s not fair; The newspaper has got it wrong. Continue reading
This is a Guest Post by Sarah Caddick (who also wrote Capturing the Essence). It includes tips for carers and those with chronic illness on how to manage the caring relationship and also other tips for coping with day-to-day life with a chronic illness. Continue reading
A collection of free, guided meditations from around the web to help you cope with pain. Styles included: insight meditation, yoga nidra, seated T’ai Chi, and seated Qigong Continue reading
Quick Tips for Pacing. These may be new ideas to you or simply a reminder. Continue reading
A post discussing different forms of Pacing and the difficulties involved. Continue reading
A discussion about the ME community’s response to the Biopsychosocial Model and SEID.
Does an ancient philosophy have something new to offer folk experiencing chronic illness? A spoonie review of Modern Stoicism Continue reading
For today’s post I’m a guest blogger over on MEcuperate: This post Much Maligned and Misunderstood: ME and Stress explains how I have readdressed my approach to stress and my ME.