Review: Can Post-Exertional Malaise make a Placebo Effect seem like a Nocebo?

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Does Post-Exertional Malaise lead to unusual Placebo Effects in ME that seem more like Nocebo? This post explores my experience of a Placebo controlled experiment. Continue reading

How to Read a Newspaper

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We read about someone who’s found an instant cure from (insert Spoonie condition of your affliction) after a relatively short amount of time. This post unpacks some of our initial thoughts including:

They were never ill in the first place; They were ill but it’s not true that they are now well; They can’t have had what I have; It’s true that they recovered but for a different reason; It’s great that they found a way to get well; If I try that will it work for me? I’ve been ill much longer, I’d know if that works; Why have I been ill so long? It’s not fair; The newspaper has got it wrong. Continue reading

Review: Mendus and a Quantified ME

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Join Mendus studies, data is considered more powerful if there’s more of it. If you join in with the Diet Study it will be become slightly more powerful than it is today in representing genuine effects in the ME/fibromyalgia population. With more participants these Mendus studies could also have greater power in a normal sense: they will make more noise and people will take more notice. This is your chance to get personally relevant answers to some niggling questions without having to wait years for university-based research to receive elusive funding. Continue reading

Resource: Guided Meditations for Alternative Pain Relief

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A collection of free, guided meditations from around the web to help you cope with pain. Styles included: insight meditation, yoga nidra, seated T’ai Chi, and seated Qigong Continue reading

I am POTS but what’s ME?

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Topics touched on in this post: POTS vs ME symptoms; heart rate monitoring and exercise; exercise for POTS; post-exertional malaise; adrenal fatigue and POTS; diet and nutrition. This is a post which is more about asking for tips from you than offering tips. Please add POTS/ME based comments. Continue reading

The Princess and ME: a Paradoxical Curse

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The Princess and ME a tale of the Paradoxical Curse…
Some people said “this is a potion to cure all ills” so she tried all their potions, but rather than breaking the curse each made her feel worse. “Such a Princess!” the people say who feel well everyday. Continue reading

Resource: Quick Tips for Pacing

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Quick Tips for Pacing. These may be new ideas to you or simply a reminder. Continue reading

Resource: Christian Meditation for the Chronically Ill

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This post includes resources for Christians and agnostics who are chronically ill. It is split into 3 sections – one for those who are doubting or frustrated; one for those too fatigued to engage in spiritual activities and a third section of activities that require engagement. Continue reading

Resource: TV Prescription Pacing, from Laughter to Boredom

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This post is the 2nd in a series on pacing. Watching TV is likely to make up more of our day than meditating. It is therefore important to get viewing habits right.

This post is my TV prescription for you, in order of importance. It is based mainly on my own observations, although you could possibly find research to back up some of it.
Continue reading