Differentiating Post-Covid PVFS, existing ME and POTS

An attempt to pull apart my POTS, ME and post Covid symptoms

Minor Ailments Major Obstacle

This post describes my recent 'minor ailments' and raises ideas about highlighting sick on Sick

Persuasion Savvy Advocacy Challenge

It is not about presenting logical argument. It is about values and emotions. Values trump facts. Every time.

Spoonie Utopia

imagine that the next election results in a government whose top priority is people with ME/Spoonies

Resource: Home Hacking Blood Glucose

My home version of a study into blood glucose and personalised nutrition

Review: Can Post-Exertional Malaise make a Placebo Effect seem like a Nocebo?

Does Post-Exertional Malaise lead to unusual Placebo Effects in ME that seem more like Nocebo? This post explores my experience of a Placebo controlled experiment.

How to Read a Newspaper

We read about someone who's found an instant cure from (insert Spoonie condition of your affliction) after a relatively short amount of time. This post unpacks some of our initial thoughts including:

They were never ill in the first place; They were ill but it's not true that they are now well; They can't have had what I have; It's true that they recovered but for a different reason; It's great that they found a way to get well; If I try that will it work for me? I've been ill much longer, I'd know if that works; Why have I been ill so long? It's not fair; The newspaper has got it wrong.

Review: Mendus and a Quantified ME

Join Mendus studies, data is considered more powerful if there’s more of it. If you join in with the Diet Study it will be become slightly more powerful than it is today in representing genuine effects in the ME/fibromyalgia population. With more participants these Mendus studies could also have greater power in a normal sense: they will make more noise and people will take more notice. This is your chance to get personally relevant answers to some niggling questions without having to wait years for university-based research to receive elusive funding.

Resource: Comfy Convalescence

Some recommended products for a comfier Spoonie life. Tips for resting, light sensitivity, support clothes and bras.

ME Awareness Blog Bomb

A May 12 Blog Bomb post.

Resource: Guided Meditations for Alternative Pain Relief

A collection of free, guided meditations from around the web to help you cope with pain. Styles included: insight meditation, yoga nidra, seated T'ai Chi, and seated Qigong

I am POTS but what’s ME?

Topics touched on in this post: POTS vs ME symptoms; heart rate monitoring and exercise; exercise for POTS; post-exertional malaise; adrenal fatigue and POTS; diet and nutrition. This is a post which is more about asking for tips from you than offering tips. Please add POTS/ME based comments.

The Princess and ME: a Paradoxical Curse

pic http://fc02.deviantart.net/fs71/i/2010/291/2/d/the_lady_of_shalott_by_rottenragamuffins-d311uip.jpg

The Princess and ME a tale of the Paradoxical Curse...
Some people said "this is a potion to cure all ills" so she tried all their potions, but rather than breaking the curse each made her feel worse. "Such a Princess!" the people say who feel well everyday.

Resource: Quick Tips for Pacing

Quick Tips for Pacing. These may be new ideas to you or simply a reminder.

Review/Resource: Variations on Pacing

Bird in cage

A post discussing different forms of Pacing and the difficulties involved.

Resource: Christian Meditation for the Chronically Ill

This post includes resources for Christians and agnostics who are chronically ill. It is split into 3 sections - one for those who are doubting or frustrated; one for those too fatigued to engage in spiritual activities and a third section of activities that require engagement.

Review: Philosophy for Health, Modern Stoicism

Does an ancient philosophy have something new to offer folk experiencing chronic illness? A spoonie review of Modern Stoicism