This post describes my recent ‘minor ailments’ and raises ideas about highlighting sick on Sick Continue reading
I will try to frame this in the sense of exploring how we process fear of death Continue reading
You know people the rest of us don’t know and we need their support. Continue reading
It is not about presenting logical argument. It is about values and emotions. Values trump facts. Every time. Continue reading
This post is the first time I have been given the product as part of a product review through the Chronic Illness Bloggers network. Continue reading
imagine that the next election results in a government whose top priority is people with ME/Spoonies Continue reading
Email the NIH and get your voice heard in ME research strategy. This post is my input. Continue reading
I’m dictating this to Google lying down so the grammar Mike be a bit off. that is an example of what I mean which I’ll leave in for the comedy value, comedy is probably much needed in this post. I want … Continue reading
10 insights: This ME Awareness Day #May12BlogBomb post is a perspective from the awareness of having ME, looking outwards through ME, as opposed to turning the lens on ME itself. Continue reading
On Twitter there have been some interesting discussions this week about disability identity and ME. I think this is worth everyone with ME thinking about. For most of us ME is enduring, substantial & has a significant effect on our life. These are the very requirements of defining a disability. Continue reading
An argument has erupted this week between UK psychologists and funders that has relevance for the problems we face with ME research. Could a common purpose create a very unexpected alliance to improve appropriate allocation of research funding? Continue reading
My home version of a study into blood glucose and personalised nutrition Continue reading
Does Post-Exertional Malaise lead to unusual Placebo Effects in ME that seem more like Nocebo? This post explores my experience of a Placebo controlled experiment. Continue reading
I’m writing more for other places, as well as my blog. This week was my 1st #MEaction post Continue reading
This post includes tips that may help you with walking and muscle problems. Topics covered include mitochondrial function (MitoQ, D-Ribose, AMPK activation), lactic acid, electrolyte balance, autonomic function, pacing and adapting. Please comment on what I’ve missed out. Continue reading
A poem written for National Poetry Day with an explanation of why it is what it is.
A Twitter strategy for using trending hashtags for ME and Spoonie Awareness.
Planning a novel. Continue reading
A post for Dysautonomia Awareness Month to raise consciousness of the need for #pwme to check for POTS.
Around 1/3 of pwme have POTS and it is often undiagnosed. This post gives some suggestions for how to go about finding out if this applies to you and what you can do about it.
I also speculate about the recent Rituximab research, showing autoantibodies towards adrenergic and muscarinic receptors, as a possible explanation of POTS in ME. Continue reading