An attempt to pull apart my POTS, ME and post Covid symptoms
A post for Dysautonomia Awareness Month to raise consciousness of the need for #pwme to check for POTS.
Around 1/3 of pwme have POTS and it is often undiagnosed. This post gives some suggestions for how to go about finding out if this applies to you and what you can do about it.
I also speculate about the recent Rituximab research, showing autoantibodies towards adrenergic and muscarinic receptors, as a possible explanation of POTS in ME.
We read about someone who's found an instant cure from (insert Spoonie condition of your affliction) after a relatively short amount of time. This post unpacks some of our initial thoughts including:
They were never ill in the first place; They were ill but it's not true that they are now well; They can't have had what I have; It's true that they recovered but for a different reason; It's great that they found a way to get well; If I try that will it work for me? I've been ill much longer, I'd know if that works; Why have I been ill so long? It's not fair; The newspaper has got it wrong.
Join Mendus studies, data is considered more powerful if there’s more of it. If you join in with the Diet Study it will be become slightly more powerful than it is today in representing genuine effects in the ME/fibromyalgia population. With more participants these Mendus studies could also have greater power in a normal sense: they will make more noise and people will take more notice. This is your chance to get personally relevant answers to some niggling questions without having to wait years for university-based research to receive elusive funding.
I have no expectation of being Cured through aromatherapy. However, I have found that some oils help with some some symptoms. Recipes can also have a synagistic effect and so I've written up a few that I use below. You may also want to read this review and this list of essential oil properties. It isn't free but some of the oils are £1 on ebay and last a long time (use this search to find them). You don't have to use every oil in the recipe. The first 5 oils I'd buy would be: grapefruit, rosemary, basil, clary sage and lavender (≅£7).