Learning how to die

I will try to frame this in the sense of exploring how we process fear of death

Are you Disabled?

On Twitter there have been some interesting discussions this week about disability identity and ME. I think this is worth everyone with ME thinking about. For most of us ME is enduring, substantial & has a significant effect on our life. These are the very requirements of defining a disability.

Resource: Walking Problems

This post includes tips that may help you with walking and muscle problems. Topics covered include mitochondrial function (MitoQ, D-Ribose, AMPK activation), lactic acid, electrolyte balance, autonomic function, pacing and adapting. Please comment on what I've missed out.

Resource: Tips for Living with Illness

This is a Guest Post by Sarah Caddick (who also wrote Capturing the Essence). It includes tips for carers and those with chronic illness on how to manage the caring relationship and also other tips for coping with day-to-day life with a chronic illness.

Resource: Comfy Convalescence

Some recommended products for a comfier Spoonie life. Tips for resting, light sensitivity, support clothes and bras.

The Princess and ME: a Paradoxical Curse

The Princess and ME a tale of the Paradoxical Curse... Some people said "this is a potion to cure all ills" so she tried all their potions, but rather than breaking the curse each made her feel worse. "Such a Princess!" the people say who feel well everyday.

Resource: Capturing the Essence

This is a Guest Post article by Sarah Caddick. Capturing the Essence How to make the most of life when faced with great restrictions due to severe ME? I have been living with severe ME for several years. The restrictions of ME have meant that my level of activity has ranged from lying on the …