Everyone has had the experience of finding song lyrics meaningful to their circumstances, despite this not being the original purpose of the lyrics. An ME Awareness Day playlist with some explanation could be a new angle to help you understand my experience.
Symptom
Metaphors in ME
What metaphors or images would you use to describe your experience of ME?
Resource: Affordable LowTox Products
Inexpensive, low toxin toiletries and makeup which you can order online
Review: Rejuvenation Lotion
This post is the first time I have been given the product as part of a product review through the Chronic Illness Bloggers network.
Paralysis and PACE
I’ve tried to tell this story how it unfolded without too much meaning making. Hopefully the contrast is clear though. I would be surprised if the hospital doctor wasn’t influenced by PACE and it’s repercussions.
Review: Can Post-Exertional Malaise make a Placebo Effect seem like a Nocebo?
Does Post-Exertional Malaise lead to unusual Placebo Effects in ME that seem more like Nocebo? This post explores my experience of a Placebo controlled experiment.
MEaction Post
I'm writing more for other places, as well as my blog. This week was my 1st #MEaction post
Is it About Getting Better or NOT Getting Worse?
Is it not so much what you do as what doesn't happen that determines recovery from ME? Musings in light of the finding of little difference between treatment groups at the PACE follow up. Is relapse more important than improvement? Tips for preventing relapse.
Resource: Walking Problems
This post includes tips that may help you with walking and muscle problems. Topics covered include mitochondrial function (MitoQ, D-Ribose, AMPK activation), lactic acid, electrolyte balance, autonomic function, pacing and adapting. Please comment on what I've missed out.
Shouting About POTS
A post for Dysautonomia Awareness Month to raise consciousness of the need for #pwme to check for POTS. Around 1/3 of pwme have POTS and it is often undiagnosed. This post gives some suggestions for how to go about finding out if this applies to you and what you can do about it. I also speculate about the recent Rituximab research, showing autoantibodies towards adrenergic and muscarinic receptors, as a possible explanation of POTS in ME.
Review: Mendus and a Quantified ME
Join Mendus studies, data is considered more powerful if there’s more of it. If you join in with the Diet Study it will be become slightly more powerful than it is today in representing genuine effects in the ME/fibromyalgia population. With more participants these Mendus studies could also have greater power in a normal sense: they will make more noise and people will take more notice. This is your chance to get personally relevant answers to some niggling questions without having to wait years for university-based research to receive elusive funding.
Resource: Comfy Convalescence
Some recommended products for a comfier Spoonie life. Tips for resting, light sensitivity, support clothes and bras.
Resource: Guided Meditations for Alternative Pain Relief
A collection of free, guided meditations from around the web to help you cope with pain. Styles included: insight meditation, yoga nidra, seated T'ai Chi, and seated Qigong
I am POTS but what’s ME?
Topics touched on in this post: POTS vs ME symptoms; heart rate monitoring and exercise; exercise for POTS; post-exertional malaise; adrenal fatigue and POTS; diet and nutrition. This is a post which is more about asking for tips from you than offering tips. Please add POTS/ME based comments.
Resource: Homemade BB Cream and Foundation
Recipes to create cheap, non-toxic beauty products including BB cream (tinted moisturiser with some sun protection factor), foundation, bronzer and facial oils.
Resource: Quick Tips for Pacing
Quick Tips for Pacing. These may be new ideas to you or simply a reminder.
Review/Resource: Variations on Pacing
A post discussing different forms of Pacing and the difficulties involved.
Tips for ME 